DIRECTOR, INTEGRATED MARKETING COMMUNICATIONS

Job Description

Job Description

Position Objective:

We seek a creative and mission-driven Director of Integrated Marketing Communications to support the creation of compelling content that elevates our brand, shares the stories of our community, and advances the Foundation’s mission. This role offers a unique opportunity to help shape how we communicate across platforms—bringing compassion, clarity, and consistency to digital campaigns, storytelling efforts, and organizational messaging.

The Director contributes to the production of thoughtful, inclusive content; manages cross-channel marketing initiatives; and supports internal teams with strategic communications that drive engagement. Equally important, this position helps ensure the voices of individuals and families impacted by Marfan, Vascular Ehlers-Danlos (VEDS), Loeys-Dietz (LDS), and related conditions are heard and honored.

Reporting to the Chief Communications & Marketing Officer (CCMO), the ideal candidate is a strong writer and project manager who thrives in a fast-paced, purpose-driven environment and is passionate about using content to build awareness, connection, and community.

Essential Functions:

1. Storytelling & Editorial Execution

• Write a minimum of 6–8 community stories per month, highlighting personal and medical journeys—including stories of loss—with compassion and clarity.
• Participate in story development and interviewing to shape authentic narratives that reflect the voices of the community.
• Oversee the production and timely distribution of four e-newsletters, tailored to unique Foundation audiences.
• Adapt long-form stories into content suitable for social media, blog, email, and print.

1. Digital, Social, and Visual Content Support

• Draft platform-appropriate, mission-aligned copy for social media and place prepared posts in Hootsuite.
• Experience in web-posting via WordPress or similar tools.
• Use Canva to produce visuals that accompany written content across platforms.
• Generate essential routine communications, such as event announcements, email reminders, and donor outreach.
• Nice to have: Create and/or edit video content for digital use, including stories, testimonials, or Foundation events.

1. Project Management & Collaboration

• Create and manage project workflows using Asana; track deadlines, approvals, and content assignments.
• Work collaboratively, take strategic direction, and nimbly adjust and evolve approaches as needed.
• Support general marketing and communications needs as they arise, including specific project leadership.

1. Content & Channel Maintenance

• Manage and maintain video uploads and playlists on YouTube, ensuring content is tagged, organized, and current.
• Keep internal content libraries – such as image libraries - updated, searchable, and easy to use across teams.
• Maintain editorial calendars to support consistent publishing and messaging flow.
• Ensure Canva is an organized, searchable, team tool.

• Master-class level written and verbal communication skills.
• Strong organizational and project management skills, with multitasking ability
• Demonstrated ability to meet deadlines and produce high-volume content without sacrificing quality.
• Strong problem-solving skills and the ability to think creatively in high-pressure situations.
• Experience with Canva, email platforms, Campaign Monitor, Hootsuite, Microsoft Office Suite, and project management tools like Asana.
• Knowledge of social media platforms and digital marketing strategies for event promotion.
• Some comfort with video creation/editing tools and workflows.
• Deep empathy for the communities we serve and a strong alignment with the Foundation’s mission and voice.
• Ability to take direction with a smile; serve as a true team player in a fast-paced environment with constantly evolving projects.
• Ability to work evenings, weekends and travel occasionally as needed.

Education & Experience:

• Bachelor's degree in communications, journalism, marketing or related discipline
• 7+ years of professional experience in writing, communications, or digital content production. (3rd act professionals welcome)

Other Experience:

• Professional experience in roles demanding fast turnarounds with a high-level of excellence.
• Some professional experience in deepening connections with individuals/communities
• Continued engagement in professional development
• Data capture/management experience

Work Environment:

• Remote
• Works closely with supervisor, other department leaders, and staff.
• Very collaborative, team environment
• 20-30% travel is required:

• Some evening and weekend work to support events as needed.
• 5-Day Marfan Foundation Retreat (November)
• 1 Week (July) Marfan Foundation Conference bi-annually
• Some travel for additional Foundation events and staff meetings (i.e. Galas, Walks)

• Participate in some virtual events and programs, which may be nights and weekends, as needed.
• May require occasional physical activity, including lifting and moving event materials.

Other Duties:

The Marfan Foundation expects all employees to conform to the expectations outlined in the Employee Manual. Please note this job description is not designed to cover or contain a comprehensive listing of activities, duties or responsibilities that are required of the employee for this job. Duties, responsibilities and activities may change at any time with or without notice.

Benefits:

The Marfan Foundation recognizes that financial rewards and great benefits are important aspects of an ideal job. That is why we offer competitive financial compensation and a benefits package. The Marfan Foundation’s benefit package includes:

• Work-Life balance
• Foundation covers EE Medical Insurance up to EPO platinum plan.
• Foundation covers the Health Reimbursement Account (HRA) up to $2500 for those choosing the Silver Medical Insurance plan option
• Foundation covers EE Long-Term Disability/Life Insurance – up to $50K
• Foundation covers EE Lifestyle Spending account – up to $800
• Offers Dental, Vision Insurance
• Paid Time Off
• Medical Flexible Spending Account (FSA)/ and Dependent Care FSA (DCFSA)

EEO Statement:

The Marfan Foundation is an equal-opportunity employer. We do not discriminate on the basis of race, religion, color, sex, gender identity, gender expression, sexual orientation, age, military and veteran status, medical condition or any protected category prohibited by local, state or federal laws. All employment is decided based on qualifications, merit, and business need. We are committed to developing and retaining the most talented people that represent a variety of backgrounds, perspectives, and skills.